Addison Grace Holl was diagnosed with DIPG on her 7th birthday and she courageously battled DIPG for 22 months.
About the Foundation
Addison Grace Defeat DIPG Foundation was established in 2018 on the 5th anniversary of her passing to raise awareness and funds for research to find a cure for Diffuse Intrinsic Pontine Glioma and to honor our daughter, Addison.
What is DIPG? Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem called the pons. It affects children almost exclusively and has no known cure.